Fragile X Syndrome Research Study​

DO YOU CARE FOR A CHILD, ADOLESCENT OR YOUNG ADULT WITH FRAGILE X?

People with Fragile X syndrome (FXS) often experience behavioural symptoms such as:

Anxiety — particularly social anxiety / avoidance

Irritability
Tantrums
Social unresponsiveness

The behavioural symptoms associated with a Fragile X diagnosis can create daily challenges for your child, your family and you. A clinical trial known as RECONNECT is currently enrolling participants to evaluate an investigational, topical treatment that may help improve Fragile X-related behavioural symptoms.

WHAT ARE THE RECONNECT STUDY QUALIFICATIONS?

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Between the ages of 3 and 22

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Diagnosed with FXS via genetic testing

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Experiencing behavioural symptoms of FXS

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In generally good health

HOW IS THE MEDICATION ADMINISTERED?

The dose of study medication depends on the weight of the participant:

≤ 66 lbs (30 kg)

2 PACKETS OF GEL/DAY

>66 lbs (30 kg) to ≤ 110 lbs (50 kg)

4 PACKETS OF GEL/DAY

> 110 lbs (50 kg)

6 PACKETS OF GEL/DAY

Parents or caregivers will be instructed on proper application of the gel to clean, dry, intact skin of the upper arms/shoulders.

WHERE ARE THE RECONNECT CLINICAL TRIAL CENTERS LOCATED?

HOW OFTEN WILL MY CHILD NEED TO VISIT THE TRIAL SITE IF ELIGIBLE?

After the initial screening visit to confirm eligibility, participants will have: